Speech and Language SETBP1 Study!

A new SETBP1 disorder study just launched!! If you or your child have a SETBP1 difference, please consider signing up for the Murdoch Children’s Research Institute’s research project into speech…

From the Blog

SETBP1 Society and the University of Pennsylvania Orphan Disease Center invite you to participate in the Million Dollar Bike Ride…

A new SETBP1 disorder study just launched!! If you or your child have a SETBP1 difference, please consider signing up…

Was your child recently diagnosed with SETBP1 disorder? Check out the following resources to help you learn more about SETBP1…

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