Speech and Language SETBP1 Study!
A new SETBP1 disorder study just launched!! If you or your child have a SETBP1 difference, please consider signing up for the Murdoch Children’s Research Institute’s research project into speech and language skills in individuals with SETBP1 variants: an international study. The project aims to improve overall understanding of speech and language abilities in individuals with SETBP1 disorder in order to to improve prognoses, better identify individuals in need of speech therapy and to develop more targeted speech therapies. This study is open to families that speak English, German, French, Dutch, Italian, Spanish or Portuguese.
To express interest in participating in the study, email Dr Angela Morgan at angela.morgan@mcri.edu.au or geneticsofspeech@mcri.edu.au.