questionnaire Archives - SETBP1 Society https://www.setbp1.org/tag/questionnaire/ Be the Hope. Be the Change. Fri, 13 Sep 2024 16:22:23 +0000 en-US hourly 1 https://wordpress.org/?v=7.0.2 https://i0.wp.com/www.setbp1.org/wp-content/uploads/2017/04/cropped-setbp1-s2-icon.png?fit=32%2C32&ssl=1 questionnaire Archives - SETBP1 Society https://www.setbp1.org/tag/questionnaire/ 32 32 124370555 SETBP1 Community Survey – 2024 https://www.setbp1.org/setbp1-community-survey-2024/?utm_source=rss&utm_medium=rss&utm_campaign=setbp1-community-survey-2024 Tue, 13 Aug 2024 18:37:59 +0000 https://www.setbp1.org/?p=6794 SETBP1 Society provided a survey to the SETBP1 Community for parents and caregivers to complete starting in April earlier this year. The survey was available in 7 languages including English. Ninety-one surveys were started and 61 were fully completed with 7 mostly completed. The survey was designed to help us better understand how SETBP1-HD and […]

The post SETBP1 Community Survey – 2024 appeared first on SETBP1 Society.

]]> SETBP1 Society provided a survey to the SETBP1 Community for parents and caregivers to complete starting in April earlier this year. The survey was available in 7 languages including English. Ninety-one surveys were started and 61 were fully completed with 7 mostly completed. The survey was designed to help us better understand how SETBP1-HD and related disorders impact affected children and adults and their families. As our adult population is growing, a separate section was dedicated to learn more about this specific population. The results of this survey are now available in English.

Download Survey Results

Survey Results in Dutch
Survey Results in French
Survey Results in German
Survey Results in Italian
Survey Results in Portuguese
Survey Results in Spanish

The post SETBP1 Community Survey – 2024 appeared first on SETBP1 Society.

]]> 6794