Give Now & Make an Impact [ultimeter id=’3995′] Join our GT25 campaign to help us reach over $125K this year! We aim to raise $25,000 on Giving Tuesday (Tuesday, November 30th) for targeted SETBP1 haploinsufficiency disorder (SETBP1-HD) research, create 25 Facebook Fundraisers linked to SETBP1 Society, match $25 for every Facebook Fundraiser linked to SETBP1 […]
A NEW resource guide to help medical specialists, educators, families, and therapists to better understand SETBP1 haploinsufficiency disorder (SETBP1-HD) is NOW AVAILABLE! This resource guide takes the findings from the 2 recent SETBP1-HD publications (Speech and language deficits are central to SETBP1 haploinsufficiency disorder and Clinical delineation of SETBP1 haploinsufficiency disorder) and summarizes them to […]
SETBP1 haploinsufficiency disorder considered a strong candidate as a speech and language disorder Austin, TX — November 2, 2021 – Childhood Apraxia of Speech (CAS) is a motor speech disorder that makes it difficult for children to speak and may occur as a result of a genetic change. In fact, 1 in 3 children have […]
