New Natural History Study with Rare-X
SETBP1 Data Collection Program See how sharing patient information will collectively make a difference in finding targeted treatments for SETBP1-related disorders and other rare disease The SETBP1 community is partnering with RARE-X, a 501(c)(3) nonprofit, to build a Data Collection Program for our families. When you participate in the SETBP1 Data Collection Program, you’ll help […]