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SETBP1 Society
  • About Us
    • Faces of SETBP1
    • Our Mission
    • Board of Directors
    • Medical & Scientific Advisory Board
    • Volunteers
    • Partners
  • For Families
    • Newly Diagnosed
    • SETBP1 Society Contact Registry
    • Common Questions
    • SETBP1 Community Map
    • Understanding SETBP1 Science
    • Research Opportunities
    • Doctors Studying SETBP1-HD
    • State Waivers
    • Get Involved
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Archive for March 1st, 2022

Day: March 1, 2022

Two new SETBP1 research projects funded through 2021 Million Dollar Bike Ride grants

by haley / On March 1, 2022Posted in Press Release

Two new SETBP1 research projects funded through 2021 Million Dollar Bike Ride grants SETBP1 Society’s participation in the 2021 Million Dollar Bike Ride generates $91,466 in funding for SETBP1 research. Austin, TX — March 1, 2022 – In June of 2021, Team SETBP1Strong participated in the Million Dollar Bike Ride (MDBR) hosted by the Penn […]

What is SETBP1?

SETBP1 haploinsufficiency disorder is a very rare disorder that is the result of a loss-of-function of one copy of the SETBP1 gene and causes a spectrum of symptoms ranging from absent speech to expressive language delays, mild-severe intellectual disability, autistic-traits or autism, developmental delays and ADHD.

Read more >
SETBP1 Haploinsufficiency Disorder guide >

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© SETBP1 Society - P.O. Box 301584 Austin, TX 78703 - 512-522-8072 - SETBP1 Society is a not-for-profit 501(c)(3) organization. Our federal tax ID number is 82-0891558.
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