New Natural History Study with Rare-X
SETBP1 Data Collection Program – NEW STUDY See how sharing patient information will collectively make a difference in finding targeted treatments for SETBP1-related disorders and other rare disease BENEFITS OF PARTICIPATING IN OUR DATA COLLECTION PROGRAMWe are building the SETBP1 Data Collection Program to … Inform researchers how SETBP1-related disorders change over time Enable better […]