It Takes a Village – Rare Community Synergy Austin, TX — April 24, 2022 In an effort to leverage resources and take advantage of synergies, the patient advocacy groups IDefine, Koolen-de Vries Syndrome Foundation, and SETBP1 Society are teaming up to offer a webinar series called It Takes a Village on the first Saturday of […]
Creation of Zebrafish Models to Provide Unique Insights into Impact of SETBP1-HD Austin, TX — April 19, 2022 – Creating animal models is a monumental milestone in any genetic research effort as it mimics a disease in a repeatable, observable manner. These models allow researchers to test, observe, modify and repeat trials on cells, tissues […]
Join our Million Dollar Bike Ride SETBP1Strong Team! Do you love cycling, live near the Philadelphia, Pennsylvania area, or simply want to support SETBP1-HD research? Our SETBP1Strong Team will ride again for the 4th year in a row in the Million Dollar Bike Ride sponsored by the UPenn Orphan Disease Center (ODC) on June 11th. […]
