2025 SETBP1 Community Survey Results Now Available
2025 SETBP1 Community Survey Results Now Available We’re excited to share the results of our 2025 SETBP1 Community Survey! 💙 This is the 2nd year SETBP1 Society invites parents, caregivers, and families around the world to share their experiences and insights through our community survey. These responses help us better understand how SETBP1 haploinsufficiency disorder […]