Big News: $25,000 Donation Match for the SETBP1Strong Team at the 2025 Million Dollar Bike Ride!
Big News: $25,000 Donation Match for the SETBP1Strong Team at the 2025 Million Dollar Bike Ride!
We’re thrilled to announce that SETBP1 Society has secured a $25,000 donation match from a generous donor for our SETBP1Strong Team—and that means every dollar you give now goes twice as far to accelerate research for SETBP1 haploinsufficiency disorder and related disorders!
Whether you’re a longtime supporter or just learning about SETBP1, now is the perfect time to donate or start your own fundraising page to help us reach our goal.
Join Us for the 2025 Million Dollar Bike Ride!
The University of Pennsylvania Orphan Disease Center (UPenn ODC) and SETBP1 Society invite you to be part of this inspiring annual event that brings together rare disease families, friends, and supporters to raise funds and awareness.
This year’s Million Dollar Bike Ride will be in-person in Philadelphia, with a virtual ride/walk option for supporters around the globe!
📍 Event Details:
Date: Saturday, June 14, 2025
Location: Philadelphia, PA (or virtually from anywhere!)
What You Can Do: Cycle or walk with us, fundraise, donate—or all three!
💯 100% of registration and fundraising proceeds go directly to SETBP1 research.
Why We Ride
This marks our 7th year participating as the SETBP1Strong Team, and every year we grow stronger thanks to the incredible support of our community. The funds we raise are making a real impact in advancing scientific research and supporting families affected by SETBP1-HD and related disorders.
Get Involved
Whether you’re ready to ride, walk, donate, or simply spread the word, there’s a way for everyone to participate:
🔗 Register or donate today!
Visit our Million Dollar Bike Ride page at SETBP1 Society or check out the full event details at the UPenn ODC MDBR page.
Let’s make 2025 our biggest year yet. Join the SETBP1Strong Team—and double your impact with our $25,000 match!