SETBP1 Society is pleased to announce the availability of several new resources. SETBP1 Disorder Information Sheet SETBP1 Society is proud to announce the release of our SETBP1 disorder Information Sheet. This is a helpful resource for medical professionals, therapists, education providers, newly diagnosed families, and anyone who wants to familiarize themselves with SETBP1 disorder. Check […]
Welcome to our SETBP1 Community!! My name is Haley Oyler and I am the president and founder of SETBP1 Society. I am the mother of a beautiful, happy, social young boy who has SETBP1-HD. My family received his diagnosed days before his 5th birthday in early 2016 after several years of testing and searching for […]
SETBP1 Society is pleased to announce the availability of several new resources. SETBP1 Disorder Information Sheet SETBP1 Society is proud to announce the release of our SETBP1 disorder Information Sheet. This is a helpful resource for medical professionals, therapists, education providers, newly diagnosed families, and anyone who wants to familiarize themselves with SETBP1 disorder. Check […]
