Save the Date: 2026 SETBP1 Family & Research Conference

Austin, Texas • November 6–8, 2026
DoubleTree Suites by Hilton Austin Downtown Capitol

We’re excited to announce the dates for our next SETBP1 Family & Research Conference, bringing together families, clinicians, and researchers from around the world for a weekend of connection, learning, and collaboration.

🌟 Mark Your Calendar

📅 November 6–8, 2026
📍 DoubleTree Suites by Hilton Austin Downtown Capitol
Austin’s vibrant culture, central location, and proximity to several SETBP1 research partners make it the perfect home for our 2026 gathering.

🌱 Theme: Cultivating Connections

This conference is designed to strengthen relationships across our global SETBP1 community — families, clinicians, therapists, and researchers — while sharing the latest science, lived experiences, and practical supports.

🧬 Help Us Shape the 2026 Conference

To ensure the conference reflects the needs and priorities of our community, we invite you to complete a brief interest survey:

For SETBP1 Families:

Tell us which topics, supports, and sessions matter most to your family — and let us know whether you’re planning to join us at the conference.
Family Interest Survey: Survey Link

For SETBP1 Researchers, Medical Specialists, and Non-Family Members:

Please indicate whether you plan to join us at the conference and how you anticipate participating (e.g., attending, presenting, collaborating on research activities).
Researcher Interest Survey: Survey Link