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SETBP1 Society
  • About Us
    • Faces of SETBP1
    • Our Mission
    • Board of Directors
    • Medical & Scientific Advisory Board
    • Volunteers
    • Partners
  • For Families
    • Newly Diagnosed
    • SETBP1 Society Contact Registry
    • Common Questions
    • SETBP1 Community Map
    • Understanding SETBP1 Science
    • Research Opportunities
    • Doctors Studying SETBP1-HD
    • State Waivers
    • Get Involved
  • Resources
    • Newsletters
    • Videos
  • Research
    • What is SETBP1?
    • Funded Research
    • Research Opportunities
    • SETBP1 Dashboard
    • Publications
  • Get Involved
    • Events
    • In the News
  • Store
  • Donate

Month: June 2023

2023 SETBP1Strong Rides in the Million Dollar Bike Ride

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2023 SETBP1Strong Rides in the Million Dollar Bike Ride

by haley / On June 13, 2023Posted in Events

SETBP1Strong Team Rides in Philly!!! For the 5th year in a row, the SETBP1Strong Team participated in the Million Dollar Bike Ride in Philadelphia, PA on June 11th. Each year since 2020 unique challenges have impacted participation within the Million Dollar Bike Ride. For 2020 and 2021, the event was entirely virtual due to covid. […]

What is SETBP1?

SETBP1 haploinsufficiency disorder is a very rare disorder that is the result of a loss-of-function of one copy of the SETBP1 gene and causes a spectrum of symptoms ranging from absent speech to expressive language delays, mild-severe intellectual disability, autistic-traits or autism, developmental delays and ADHD.

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SETBP1 Haploinsufficiency Disorder guide >

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© SETBP1 Society - P.O. Box 301584 Austin, TX 78703 - 512-522-8072 - SETBP1 Society is a not-for-profit 501(c)(3) organization. Our federal tax ID number is 82-0891558.
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