Registration Is Now Open for the 2026 SETBP1 Family & Research Conference!

We are thrilled to announce that registration is officially open for the 2026 SETBP1 Family & Research Conference, taking place November 6–8, 2026 in Austin, Texas at the DoubleTree Suites by Hilton Austin Downtown Capitol. This year’s conference will bring together SETBP1 families, researchers, clinicians, and advocates from around the world for three days of […]

New Parent Speech & Communication Survey Results Report Now Available

The SETBP1 Society is excited to share the launch of our new Parent Speech & Communication Survey Results Report, created from responses provided by families across the global SETBP1 community. In early 2026, 111 parents and caregivers participated in this community survey, sharing their experiences, challenges, insights, and successes related to speech, language, AAC, and […]