We are thrilled to announce that registration is officially open for the 2026 SETBP1 Family & Research Conference, taking place November 6–8, 2026 in Austin, Texas at the DoubleTree Suites by Hilton Austin Downtown Capitol.

This year’s conference will bring together SETBP1 families, researchers, clinicians, and advocates from around the world for three days of learning, collaboration, and community building. As always, our goal is to create a space where families feel supported, experts can share the latest research, and our global SETBP1 community can connect in meaningful ways.

What to Expect

• Expert‑led presentations on SETBP1 research, communication, therapies, and medical updates
• Family‑focused sessions designed to support caregivers and empower advocacy
• Opportunities to meet researchers, clinicians, and other SETBP1 families
• Community‑building activities and moments that remind us we’re never alone on this journey

Whether this is your first conference or your fifth, we can’t wait to welcome you to Austin for a weekend filled with learning, connection, and hope.

👉 Register now: https://www.setbp1.org/2026-conference

👉 Learn more: https://www.setbp1.org/2026-conference

We look forward to seeing you in Austin!